This was most difficult stage in my personal life, I have been passing through the last 20 days wherein i had very intense relationship with this so called flaky friend.I decided to pen down a poem on my friendship(which i have never done for any other friends).
beyondPsoriasis.co.uk 
It is the unsolicited advice I dread the most, because it means my skin has drawn attention (even when I think it is barely visible). It makes me feel like shit. It makes me think: “Is it really do bad? Is everyone wondering what is wrong with my skin?”
I often think of how I will answer when people ask me “What’s wrong with your skin?”. I imagine that I am explaining calmly what psoriasis is. But when I am in the situation my throat tightens and I can barely mumble some excuses. My face feels hot and cold, not sure if I lose all color or am flushed.
I have now learned to live with this condition and am happy most days.
Thanks for the poem!
LikeLiked by 1 person
Hey Julia,
Very much relatable as i too hesitate speaking things to people when asked about the flakes or the newly formed skin cells that are other than normal. I am trying to adept with this condition. Writing things definitely is helping out. I also am trying to share more experiences on Instagram. you can also follow on https://www.instagram.com/beyondpsoriasis/
LikeLike
You so eloquently put into words the struggle, pain, humiliation, intense itching, flaky skin (mine is half flaky and half “pustule-like”)world I recently inhabited. I’m at the point of my life that my skin has mutated to psoriasis nails and psoriatic arthritis as well. I’m thinking of a time not so long ago that it was the areas of flakiness or angry pink/red “sores”…. Before the brittle, peeling, clubbed fingertips (and starting on the toes) that feel like I submerged them in negative 40 degree ice water, then smashed them with a sledgehammer, while trying to do a manicure with a weed wacker…. One minute there’s an overgrowth of hard callous-like skin all around my nails and cuticles and feel like they have a coating of dried wax, to the next minute that the skin has cracked, flaked, peeled up, nail vanished exposing a tender nail bed…. Oh the agony. Will it ever end? My only salvation….. I am NOT alone in this battle.
LikeLiked by 1 person
Hey,
You are truly a star for going through all of this and still putting your best foot forward, fighting like a warrior. All psoriasis warriors face similar challenges, and it’s our fighting spirit that makes us unique. Think positively—our uniqueness and strength in battling the unknown set us apart. In other words, we are all Psor-Avengers. You may connect with me anytime if you want to talk to a fellow Psor-friend.
LikeLike
I have erythrodermic psoriasis paired with psoriatic arthritis.
The mental and physical struggle really is real. The struggle of all the different doctors and all the different medications —from corticosteroids to biologics to just wearing hoodies and pants to cover my body when going outside. This poem made me realize that I really am not alone and that somehow makes me feel less lonely and better. This is so beautiful sir, it made me shed a few tears. Thank you so much 🥹
LikeLiked by 1 person
Hi Julia,
I understand the difficult journey you’re going through—from finding the right doctor and medication. I face these challenges too. You’re not alone; many people around the world are dealing with psoriasis or other autoimmune diseases. We’re one big family, where some express their struggles, and others don’t.
You are brave for coming forward and accepting your psoriasis. It took me a long time to accept it myself—I used to deny that I could have psoriasis. Acceptance is the first step, and it took me a while to realize this. That’s when I picked up a pen and wrote that poem. Thank you for appreciating it.
If you ever need to share your thoughts or talk to someone who understands, feel free to reach out. We can share our experiences and support each other.
LikeLike